Parents worried about the diagnosis and treatment of children with fatty acid oxidation disorders (FAODs) now have a valuable resource: informnetwork.org, a new website developed by Boynton Beach, FL – based, Rose Marcom for the International Network for Fatty Acid Oxidation Research and Management (INFORM) at the University of Pittsburgh Medical Center Children’s Hospital of Pittsburgh.
The goal of the new site is to help families and professionals find the latest information on these rare inherited metabolic conditions, according to Jerry Vockley, M.D., Ph.D., scientific director of INFORM and professor of human genetics and the Cleveland Family Endowed Chair in Pediatric Research at the University of Pittsburgh.
“We are excited and honored to be working with such a prestigious institution on the leading edge of research and development in this area,” said Andrew M. Rose, President and CEO of Rose Marcom. “It is even more fulfilling knowing that families impacted by these disorders can find a place to learn more and interact with the organization.”
The new website provides a central informational resource for researchers, clinicians and families to discuss the causes, diagnosis, and management of these serious genetic conditions. Along with the latest developments in genetic research and clinical trials, INFORM’s new site
includes an interactive forum, where family members can post questions about these disorders.
In addition to developing sponsorship materials for INFORM’s upcoming annual symposium in Amsterdam, The Netherlands, scheduled for September 2019, Rose Marcom is providing SEO services and ongoing multi-channel PR and communications strategies for the organization.
Founded in 2013, INFORM is the only global scientific organization that focuses on research, education and discussion into the cause, diagnosis, and management of disorders of fatty acid oxidation and the carnitine cycle. For more information, visit www.informnetwork.org.
Rose Marcom LLC is a full-service, multi-divisional marketing and communications company offering a full range of services for corporations, non-profits and private foundations. For more information, contact Andrew M. Rose at email@example.com or (561) 945-9356.